Great story! I have also been blessed and my blessing is now four years old. His name is Jack and I thank God for him every day. I have two other children, but I’ll tell you, Jack is the child that brings me a certain kind of joy that only we with these children can really understand. I know his presence here on earth makes me a much better person. It seems that people can be uncomfortable at first, but I think they take their cues from us. If we are joyful and sincere, then it truly shows. Sometimes people’s first reaction is one of fear. They just don’t know how to react or afraid they will do or say something wrong. It will get much easier with time Nina. Once again, I really enjoyed your story!

I hav no words again after reading ur post..just wanted to say Thankz for sharing ur story with us,It will make me more stronger then I am….

U r a gr8 mom n ur story n ur faith in god is a lesson for me…
My daughter Mariam she is just 2 weeks old n she had also been told for the surgery when she will be atleast for 3 kg.I need ur prayers inshallah as u said God send our babies with a paln n which we dont knw…..N for My lill angel too he has a plan…

My prayers a love for micah…

safia ali
Muskan4u2@hotmail.com

Congratulations on the gr8est to u, me ,n so many other moms hav been given by god…..

I hav no words after reading ur post though i want to leave my comments on this post but Iam speachless……

Rite now i can say only 1 thing n that is u r a gr8test mom.My prayers n love for Micah may god will give all his blessings to this sweet lill angel.

Best of luck with new year plans…
safia ali Muskan4u2@hotmail.com

It starts with news impossible to hear.
It conjures up your every fear.
It’s when they say your child is ill.
That’s when time just stands still.

In that moment, that suspended time.
A thousand thoughts run through your mind.
Will he ever laugh and play?
Will he see his wedding day?

All the planning, the hopes and the dreams.
Are put on hold….just what does this mean?
His bed is empty, his toys alone.
For now, the hospital will be his home.

This is a place where time stands still.
Where the void’s too large to ever fill.
For in a hospital’s intensive care.
Children lie, some unconcious, some aware.

And time is measured by a new yardstick.
Every second marked by a monitors tick.
Noting every breath the child takes.
And every beat his tired heart makes.

Just a moment of watching a child writhe or strain.
In sedated confusion, or fear or pain.
Or pleading for a drink to which you can’t oblige.
Seems like far more than an entire lifetime.

And the children who live far too long.
In hospital gowns, trying to be strong.
They have old souls, that’s what they say.
Because in each moment they’ve lived a thousand days.

For those who say, time goes by too fast.
Sit with a seriously ill child and see just how slowly time can pass.

Your blog post penetrates the soul. Sharing your emotions in such a raw way makes everyone better that has the privilege to read your story.

Teddy had a small leak in his heart which luckily didn’t require any surgery to address. I have always wondered if I would be a strong as you to be able to go through a comparable experience with any of my children. — I hope that question never needs to be answered — sharing your experience will only help those that come after you a need advice and comfort.

Thanks once again for making our world a better place because you are who you are…

Justin